Royce Qin, an 11th grade student at the Shenzhen International Communication Academy, has been an avid student of life sciences since he was a child, and has spent his vacation time visiting biology labs at the Institute of Genetics and Development of the Chinese Academy of Sciences (IGD), Stanford University, UC San Diego, UC Riverside, Wuhan University, and other institutions.

Since entering high school, he has been keen on the academic study of biology, and while balancing the refinement of the whole subject, he has completed the university biology-related courses on his own, won the global gold medal in the British Biology Olympiad (BBO); won the global gold medal in the U.S. Biology Olympiad (USABO); and succeeded in designing the "Constructing an Efficient Cellulose to Glucose Strain for Recycling Waste Clothes" in the capacity of a mainstay. Glucose strains for recycling of used clothes", and participated in the International Genetically Engineered Machine Competition (iGEM) with this project, won the global gold medal and was nominated for the best sustainable development and the best experimental design, and mastered the construction of transgenic strains, sequencing, biochemical analysis of proteins, data modeling and analysis, and social tuning, etc., and practiced in the one-year iGEM competition. iGEM competition; participated in the Tsinghua University Qian Xuesen Class New Materials Summer School and won the Best Interdisciplinary Award in Biomaterials; won the Gold Medal in the UKCHO British Chemistry Olympiad.

Founded in 2003, Shenzhen International Exchange College (SIEC) is a famous international school with national enrollment, and has been ranked as the first in the direction of undergraduate admissions to British universities and the top five in the direction of undergraduate admissions to American universities in China's international high school rankings all year round. SZCC students are selected from many high-quality secondary schools in China, with excellent grades, motivation and social responsibility, strong learning ability, and strong teamwork spirit cultivated by the school. The school is strong in the direction of biological sciences, computers, and psychology, and of the 24 graduating students of the most recent class (about 250) who were admitted to the University of Cambridge (U.K.), six majored in Biology, and two majored in Psychology. The SZNJ 2022 iGEM Varsity Team consists of 23 students from G1 to A2, who have completed a series of work from December 2021 to November 2022, including project design, strain construction and validation, product extraction and purification, data modeling, establishment of the project website, survey of social enterprises and data analysis, submission and defense of the project, etc. The team is composed of a group of students from SZNJ who are passionate about and good at biology, computer, art, music and other professional knowledge, and who have a strong interest in biology, computer science, art, music and other professional knowledge. The team is composed of excellent students who are passionate about and good at biology, computer science, art, music and other specialized knowledge, and have a strong spirit of cooperation.

The reason I wanted to create a website on rare genetic diseases began with an incident. Last summer, I met Prof. Shen, who graduated from Harvard University. He is a genetic counselor who works with couples who are struggling with genetic disorders in their children. I had the privilege of sitting in on his online counseling with one of these couples: they had three children in total, but none of them survived past the third day of life. Before coming to see Prof. Shum, they believed that the hospitals were to blame: they even tried to sue the hospitals, even though they were among the top hospitals in Hong Kong. After weeks of analysis, Prof. Shum told them that "all these babies had the same genetic mutation and were unable to synthesize lactose on their own. After exhausting the lactose provided by their mothers, they would die almost immediately".

This was the first time I felt that such a tragic misfortune was so close to me. 2018, there are about 350 million people worldwide with rare diseases, about 80% of which have a genetic basis, and 95% of which lack any FDA-approved treatment. I was shocked by these staggering numbers and realized that these diseases are more prevalent than we thought, yet receive little attention and proper treatment. While this number may seem like a small percentage of the world's population, the families of these patients live in equal pain, making rare genetic diseases an issue that cannot be ignored. Another major problem facing all of humanity is that most people do not understand the importance of genetic counseling. Prof. Shen told me that 90% of his cases are postpartum cases, which means that the suffering of the child and the family has already occurred. It is too late. Only when people know that they should be checked to see if they carry genes that can cause genetic disorders will cases of genetic disorders decrease because of prenatal interference. My interest in genetics has peaked, driven by a sense of responsibility to help people with rare genetic diseases. Therefore, I created this website with the aim of popularizing some knowledge about genetic diseases for the general public, providing access to genetic counseling, and opening up some avenues for volunteer activities to go and help patients in a realistic sense. I hope that this website will raise the level of awareness of genetic disorders, thus creating waves of interest in this neglected issue, and as the name of the website suggests, really starting to pay attention to genetic disorders.